RESOURCES FOR PARENTS
The following links are resources for parents to make an informed decision on Newborn Screening. If you still have questions, please call or e-mail us.
- Baby’s First Test
- March of Dimes
- Dried Blood Spot or Urine?
- A Parent’s Guide – When a Blood Sample is Taken From Your Baby
- Save Babies Through Screening
- Merd India – Parent Advocacy Group
Videos
TAKE THE FIRST STEP INTO A WONDERFUL STORY
Additional Resources
Organizational Resources
Disorder Resources
- Congenital Adrenal Hyperplasia Support
- Cystic Fibrosis – Online Picture Book for Children
- Fatty Oxidation Disorders Communication Network
- G6PD
- Garrod Association
- Genetics Home Reference
- Mitochondrial Medicine Society
- National PKU Alliance
- New England Consortium of Metabolic Programs
- Organic Acidemia Association
- Parents of Galactosemic Children
- Vademecum Metabolicum
Diet Resources
